This is a great website for parents mentioned at the Spina Bifida World Congress to help parents understand how they can help manage their child’s neurogenic bowel (link below) This was put together by Colleen Payne, a parent of a child with spina bifida who has also recently worked with the Spina Bifida Association to put together their current bowel management protocol. She also admins a Facebook group for people with spina bifida or parents of children with spina bifida to do discuss bowel management which you can find a link to on the website.
Dr Carylyn Lim 