Author: Carylyn Lim

A story of an amazing young man!

https://www.abc.net.au/news/2023-06-07/student-recognised-hsc-excellence-after-traumatic-bike-accident/102425460?utm_campaign=abc_news_web&utm_content=link&utm_medium=content_shared&utm_source=abc_news_web

Or if wheelchair sports is your thing, there is the Junior Wheelies Winter Camp

https://www.wsnsw.org.au/events/180331/

Registration for this event closes at Fri 16 Jun 2023 23:45.

Sargood is having a Kids Camp these upcoming school holidays with some fully funded spots available, and additional spots available where you can use your iCare/NDIS funding. It is a great opportunity for any child with a spinal cord injury/spina bifida!

I have just come across this great podcast by Susan Wood from Spinal Cord Injuries Australia(SCIA), specifically two episodes that talk about attending school with a disability (not just a spinal cord injury) with Jodie Thompson, Paediatric Nurse Consultant, and Amanda Lane-Brown, Clinical Psychologist. I have had the privilege of working with Jodie and she is a wealth of experience and knowledge.

Link to Podcast can be found here: https://scia.org.au/podcast/

Episode 23 – February 7, 2023
Be Curious, Not Judgemental – Disability and Primary Schools

Episode 25 – April 27, 2023
The Underdogs – Disability and High School

Have just learnt about this great charity:

“JMF provides financial assistance to purchase items such as new wheelchairs, vehicle and house modifications, surgery and medical assistance, computers, remedial aids or any item that improves the quality of life for the child and their family. “

The John Maclean Foundation

Very proud of the work that my adult rehab colleague Dr Rummana Afreen at Westmead Hospital has done to establish a much needed clinic for adults with complex disabilities and recognising how important patient centred care is for both the patient experience and improved medical care. Hopefully, with more public awareness, we will be able to establish more clinics like this.

https://www.abc.net.au/news/2023-04-12/complex-disabilities-carers-philanthropic-clinic-care-help/102142048

https://www.abc.net.au/news/2023-04-12/meet-the-volunteer-doctors-helping-care-for-adults/102215940?utm_campaign=abc_news_web&utm_content=link&utm_medium=content_shared&utm_source=abc_news_web

This is a great website for parents mentioned at the Spina Bifida World Congress to help parents understand how they can help manage their child’s neurogenic bowel (link below) This was put together by Colleen Payne, a parent of a child with spina bifida who has also recently worked with the Spina Bifida Association to put together their current bowel management protocol. She also admins a Facebook group for people with spina bifida or parents of children with spina bifida to do discuss bowel management which you can find a link to on the website.

https://spinabifidabowelmanagement.com/

When:

Saturday, 25 March 2023, 10am – 4pm

Sunday, 26 March 2023, 10am – 3pm

Where:

International Convention Centre, Darling Harbour (Hall 1)14 Darling Dr, Sydney NSW 2000

https://tickets.lup.com.au/source-kids-sydney-2023?cat=cat-registration

13-year old Eva was born with cerebral palsy (CP), a physical disability that affects her movement and posture. She recently made it her goal to conquer Mount Kosciuszko in her wheelchair, and she did it! Eva tells us her story on ABC Behind the News. What an amazing feat!

See video of Eva’s journey on : https://youtu.be/u-d9uW5oaqA